Experience on Vyjuvek
Living with DDEB
Hear Chelsea talk about living with DDEB and applying VYJUVEK
Hear Fred talk about finding freedom beyond the wounds
Chelsea,
living with DDEB
"Managing my skin wasn't just painful, it was mentally draining. I dressed to cover up and avoided physical activities like basketball and volleyball, as well as social activities like going to the beach."
"This healing gave me freedom I hadn't felt in years. I realized I can go to the pool with my daughter. I've started to feel like I can do things that I used to hide from, like going to the beach or wearing shorts when it is hot out."
Willie,
living with DDEB
"For decades, I had wounds that I managed with over-the-counter creams and antibiotics, pain and stiffness that came and went, and skin that broke down from things as simple as friction or pressure."
"One of the biggest things that I noticed when I started the treatment was the improved ability to bend down, pick something up, or just walk. I didn’t even realize how much pain I was dealing with day to day until it went away."
Fred,
living with DDEB
"DDEB has kept me from doing anything really strenuous…for fear of opening up another place on my skin."
"Now, my skin starts healing within a few days, and once the wound is healed, it doesn’t itch. For me, that’s a major difference. I’m much more present without the pain and itch. The wounds can be very distracting, and I would have to try hard to keep my mind off of them before VYJUVEK. Now I have the mental freedom to function in the world without feeling burdened by my wounds."
VYJUVEK Voices
If you are considering starting therapy with VYJUVEK, why not speak to someone who already has?
- VYJUVEK Voices connects you with an individual who has experience using VYJUVEK.
Living with RDEB
Hear Emily talk about living with RDEB and applying VYJUVEK
Vanessa,
living with RDEB
"As a 38-year-old who has been dealing with EB since birth, I'm so grateful for VYJUVEK because we finally have a treatment for this devastating disease. VYJUVEK not only gives me hope, but it gives parents and future generations of patients an option that we never had."
"In the chronic areas, some wounds have shrunk, and some have closed for days or even weeks. I never thought this would be possible."
Myrna, mom to
Edrix living with RDEB
"When we started VYJUVEK, we wondered what would happen… the difference was mind-blowing."
"Because Edrix’s wounds were really bad when he was born, especially on his left leg and lower extremities, we bandaged a lot. Edrix is very active and very curious. As Edrix got older and more mobile, more wounds and blisters appeared."
"The best part is how the skin becomes tougher. If he falls or something, or hits himself, it’s not as easy to reopen as parts of the skin not treated by VYJUVEK."
Isaiah,
living with RDEB
"Before, a wound would get bigger quickly if we didn’t treat it right away. Now, if I notice a wound, I can go a whole day and it’ll still stay pretty small. And I have less of them."
"Before VYJUVEK, I would say that my mom wrapped me and it took about maybe anywhere between an hour and an hour and a half, sometimes even 2 hours, depending on how much I had on me. Because of VYJUVEK, we’ve cut it down to about half an hour to 45 minutes. So that makes a big difference."
Learn what to expect with VYJUVEK and how it can fit into your life.
INDICATION AND USAGE
VYJUVEK is a topical gel used to treat wounds in adult and pediatric patients (from birth) with dystrophic epidermolysis bullosa (DEB).
IMPORTANT SAFETY INFORMATION
VYJUVEK gel should be applied by a healthcare professional, patient, or caregiver.
After treatment, patients and caregivers should be careful not to touch treated wounds and dressings until the next bandage change. If accidentally exposed to the VYJUVEK gel, clean the affected area.
Wash hands and wear protective gloves when changing wound dressings. Disinfect bandages from the first dressing change with a virucidal agent and dispose of the disinfected bandages in a separate sealed plastic bag in household waste. Dispose of the subsequent used dressings in a sealed plastic bag in household waste.
The most common adverse reactions (>5%) were itching, chills, redness, rash, cough, and runny nose. These are not all the possible side effects with VYJUVEK. Call your healthcare provider for medical advice about side effects. You may report side effects to FDA at 1-800-FDA-1088 or to the Sponsor at 1-844-557-9782.
Please see Important Safety Information above and click here for full Prescribing Information.
IMPORTANT SAFETY INFORMATION
INDICATION AND USAGE
VYJUVEK is a topical gel used to treat wounds in adult and pediatric patients (from birth) with dystrophic epidermolysis bullosa (DEB).
IMPORTANT SAFETY INFORMATION
VYJUVEK gel should be applied by a healthcare professional, patient, or caregiver.
After treatment, patients and caregivers should be careful not to touch treated wounds and dressings until the next bandage change. If accidentally exposed to the VYJUVEK gel, clean the affected area.
Wash hands and wear protective gloves when changing wound dressings. Disinfect bandages from the first dressing change with a virucidal agent and dispose of the disinfected bandages in a separate sealed plastic bag in household waste. Dispose of the subsequent used dressings in a sealed plastic bag in household waste.
The most common adverse reactions (>5%) were itching, chills, redness, rash, cough, and runny nose. These are not all the possible side effects with VYJUVEK. Call your healthcare provider for medical advice about side effects. You may report side effects to FDA at 1-800-FDA-1088 or to the Sponsor at 1-844-557-9782.
Please see Important Safety Information above and click here for full Prescribing Information.
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